By Mia B. Lorenzen
sclerosis sufferers we would very much like to hear Mia's story.
The process during the investigation phase.
Unfortunately - can we bring the story. It is a long but honestly and incredibly well described story - course - so instead of bringing the whole story we have agreed to bring over 3 parts.
The first part comes here…
Thursday, June 28, 2018. Waking up with a horrible headache in the back of my head, I am really good at the sore throat. I have it a few days, however, fit my work. I googled sinusitis and in rare cases you could get a headache and find out that I once had sinusitis ... and it shouldn't stop me from working even if it's hard on my head.
Friday morning, July 6, 2018, I'm going to work. I have vacation from my original job but have taken some temporary work hours at a nursing home.
In the morning around 10 am I start to get a tingling / sleeping sensation in my left thumb, all the way out, it comes and goes a little thinking that I probably just squeezed my finger into something.
I talk to a colleague about it being awkward when something is slavish and she tells a story about her own hand sometimes holding her own little party ..
… Some time goes by and I now feel the same feeling around my lips and nostrils, still only on the left side. I get a little worried, but as it comes and goes I continue my work .. I now start to feel it in my toes and up on the outside of my leg around 13. It begins to take hold and now also takes hold of my hand, up my arm and around my ear and eye.
My colleague gets worried about me and says I have to go past our other colleague before I go home to get my values measured. I do not know if I am worried at this time, I probably am, but just think I'm really so afraid that I suppress it. Because there is never anything wrong with me? That's the neighbor it happens for!
I pass another colleague before I go home, she measures my values, is all fine. I take a contract with my own doctor, where I get a secretary. Unfortunately I cannot speak to the doctor but she will leave a message and if he does not call back before 16 I can call the guard doctor. The time now is 15.00:112. Or I could call XNUMX if I thought I might have a brain haemorrhage ..
A brain haemorrhage ?!
It's not exactly what one suspects oneself for having.
And what if you are a medical secretary, there should be no alarm bells ringing at you when I tell you my symptoms. ?
I drive home gently with a colleague behind me and listen all the way, the last 600m before I am home I lose all the energy in my left arm. But I'm coming home.
The doctor does not call and I contact the doctor. The doctor does not hesitate for a second and sends an ambulance with emergency call immediately.
I get very scared when he says he wants to send someone out, I sit in our car with our youngest just at 1 year while my boyfriend is inside and shopping. I kindly ask the doctor to wait ten minutes to send the ambulance as I am only home in ten minutes. And he will. I hang up and call my girlfriend who is in need. But his mobile is in the car, I panic a bit! Otherwise, I get dragged back to our daughter and get her out of the car. I need to go in and grab my girlfriend. He gets out of use as I just got our daughter out. I start to cry, and tell them we're going home, an ambulance arrives. We get our daughter delivered by her uncle and aunt on the road.
The ambulance is coming and so are some really cute ambulance people.
They drive me up the amva in Sønderborg and I am being investigated in the head and end. A young foreign doctor comes in and says I have to in a scanner, there are two choices:
CT scanner and MRI scanner.
He discourages CT because I am so young (29) because of its powerful rays. An MRI can only be done on Monday. So I can be allowed to come home Saturday morning on leave and then come back Monday or Tuesday for scanning. For all my values and blood tests were fine. So no reason why I was there he meant. However, I cannot use my entire left side at this time.
And I get wheelchair-bound.
On Saturday morning I will be checked by another doctor (Kathrin) she is safe that there is something totally wrong, she does not hesitate, I will under no circumstances be allowed to come home, as she says: you can not even go. Then she sends me in a CT scanner right away, then for an ultrasound scan of my blood vessels in my throat. When it is over I will be driven back, but will not reach
long before they call and say I need to get back in a CT so we will turn around .. this time I will be scanned with contrast fluid.
Again, I get an answer that everything looks fine. But that they can see I've had a sinusitis.
I am now being transferred to the neurology department. And here I should be at least tomorrow. There's a vague shift so I'm just here. Being taken over by another doctor who says I probably can
come home tomorrow on leave. Since my tests don't show anything, I've probably just been stressed. !!! I'm telling you I'm not stressed? I'm fine, yes I work a lot have two young children, but I'm not stressed, I know myself well enough to know. I've been down a road where I was stressed and depressed.
yes hi mia, i was actually driving home but i couldn't get you out of my head i know there is something to you you have many symptoms but they are not typical .. i exclude that there is a bleeding in the brain but i will / can not shut out that you have had a transient blood clot in the brain .. so now i put you in blood thinning medicine. And you get a heart meter that you should have on the next day maybe more. I would also like to do a spinal cord test on you ,?
Of course she must do well. The other doctor who had the guard stood and looked like a big question mark, she couldn't see why I had to do all this when my tests showed nothing.
I have taken a spinal cord test and more blood tests, think we have taken 27 already .. so now I lie waiting for answers again ..
Thoughts are flying around in my head and I really just want to go home. But can also see for yourself that it is not realistic ... .. the test comes back, shows nothing ... (at least not something they say yet ...…….)
The second part of Mia's story comes in the next issue - you can find it here https://www.sclerose.info/forloebet-op-to-diagnosis-sker-det-not-kun-for-bojo-del-2 /
About Mia… in short…:
I am 29 years old, mother of 2 children boy 6 years and girl barely 2 years.
Living with girlfriend and kids
Starts on education as social and health assistant in Nov.
Teaches pole dancing and fitness. (Currently sick leave due to lack of force on the left side)
Large family man